As many of you know, we have 5 beautiful children, three of whom are on the autism spectrum. We are not rare in that 1 in 91 children are now considered to be on the autism spectrum. We are also not rare in that many families have more than one child on the autism spectrum. And, I will go one step further and say that we do not believe that I am not rare in that I will do ANYTHING necessary to reclaim our children.
It was about 8 years ago, when our third daughter was just 9 months old, that we realized something was not right. She had been our healthiest pregnancy and nursed better than any of our other children, yet she was failing to make her milestones. By 10 months old, she was screaming everyday in pain, from digestive issues. While she would not be formally diagnosed on the autism spectrum for several years, we set on a coarse to help heal what we simply believed to be digestive issues. As a nutrition consultant, that much I could handle.
Autism, however, stumped me. I had done childcare for a child with autism, as a college student, but the diagnosis for our daughter left me numb and screaming, “Where is my manual? Where is my guidebook? What do you mean there is nothing you OR I can do?” I am a fixer by nature. More than anything, it really hit me that so many families were battling the day by day battle ground that we know as autism with NO guidance. I have all kinds of beliefs, now, on why that guidance is NOT there and not coming anytime soon from the government or the medical community; however, that is a book that has already been written by others. (Read them all!)
Out of this frustration, came a determination, on our part (my wonderful husband, Chris and myself) to help families (and the medical community), help children with autism. Over the past few months, we have be laying the ground work for an Autism Advocacy Program that will enable us to take the programs we do for families and train other advocates to do the same. Ideally, we are looking for parents who have a child on the autism spectrum, have had a diagnosis for at least one year and who believe that children and families can begin or continue to heal. We are very committed to keeping families intact and empowering families to break down the doors that we know as autism.
If you or someone you know are interested in learning more about becoming an Autism Consultant/ Advocate, we would love to hear from you. Please drop us a note at www.asdperspectives.com to get on our information list for our next conference call, info session or to set up a personal time to talk. If you are a parent and would like more information about consulting, please feel free to contact us, also.